This is our story on trying to start a family, Hoping for a happy ending

Our path to parenthood that lead to IVF/ICSI & a WHOLE lot more

Thursday 22 December 2011

The waiting is the hardest part & how I'm coping or not coping with Christmas


Well so the lyrics from the song by Tom Petty & the Heart breakers goes....

While I'm not currently doing an IVF cycle, I want to use my blog to be honest about how I'm feeling & what I'm thinking. Maybe the posts should start "Dear Diary"! Seriously though maybe someone well read these posts and relate & not feel alone. A problem shared is a problem halved so the saying goes.

Once we made the decision earlier this year to try donor sperm, well it was easy.  After counselling etc.. you are given a list of donors and you make your pick, simple.

Now we have taken the Dr J's advice to look for an egg donor its not that simple. First we have to go through counselling all over again. 2 sessions, 2 weeks apart then a 2 week cooling off period. It's a little silly as we did counselling for donor sperm and this is exactly the same - its just role reversal, this time instead of sperm its an egg so the child will only biologically be 50% ours, a decision which had already been made. Also there is the cost as last time it was about $600 for these sessions and non of it was able to be claimed back.

As soon as Dr J told us to find an egg donor we got right on to it. Unlike donor sperm, there is no egg bank where you can go & choose some from. You have to advertise for someone to be a donor for you. The same day we saw Dr J, that night I had posted two adverts on line seeking a donor. I did further research and found some other sites to post on as well.

H & I aren't controlling people but we are both very organised & are planners. Finding a donor is totally out of our hands. We have to wait until someone responds to our advert & as you can imagine there are many people advertising, just as we are. I didn't think I would get a response straight away but nearly 2 weeks on I have not had one enquiry about our advert.

I start to worry "what if we can't find a donor?" This is all up to fate & is I guess, in gods hand's. I'm trying to relax and not think about it and try to use this time I have given myself away from IVF till March as a break from stress. But of course there is no guarantee we can do IVF in March, a no donor by then, no go.



Christmas this year is difficult, I hoped last year that this Christmas we would have our longed for child or at least be pregnant. H & I love Christmas, I never had a Christmas tree growing up so when we first moved in together we went & got one & over the years have collected so many beautiful ornaments & decorations. We normally play some of our favourite Christmas music and decorate in November. Of course in November I was doing IVF & felt quite unwell, even more so than usual with the steroids they had put me on. By the time December came around I had to cope with the heart diagnosis & the fact cycle 9 had been a failure.

H & I both didn't feel in the Christmas spirit & as the family aren't coming to our house this year, we just didn't have out hearts in decorating like we normally do. This is the first Christmas in 14 years in this house together it has not been decorated. We've put out a Santa sack to put our gifts in & strung up the cards we've received and that's it. Last Friday night H & I decided that it might be nice to do one of our usual traditions, which is drive around and have a look at the houses who have won the Christmas lights contest. We got to the first house & I started to feel a bit sad seeing all the little happy smiling faces, when we got to the second house every other person had a babe in arms or was pregnant or both. I started to feel dizzy & anxious and for the first time in a very long time I had a panic attack. I just made it back to the car before bursting into tears.

I was not jealous, nor did I begrudge all those people with their beautiful families. I think I just was overwhelmed with the fear of 'what if we never get to experience that'.  I had cried when I found out cycle 9 had failed & had shed some tears on & off, but that night I really let it all out & sobbed for quiet some time whilst apologising to H for being so weak (which he assured me I'm not). I woke up the next morning and felt no better, it was a similar feeling to how I've felt when someone has passed away.

As luck would have it, I happened to already have an appointment with my therapist for first thing Monday morning and I had started crying again in the waiting room. When Dr K came out to get me I joked "you can see this is off to a good start, I'm already crying in the waiting room". I had not seen Dr K since October so I explained everything that had happened and how I felt I was coping very badly.



I then got an email Tuesday from a friend who is also battling infertility, but is on a different path than I am (she's only done 1 IVF cycle) & I think her way of coping is joking about it. A few months ago she was the one I blocked from twitter when she responded to a tweet of mine that I had use of my arms & legs, a great husband, the cats & life would be fine if I didn't have a child. Maybe that's what she tells herself. But H & I both have an overwhelming, strong desire to be parents. So knowing all this I get an email from her that is a joke about being infertile at Christmas. It was set to the 12 days of Christmas but all the lines were about being infertile & not having children etc... at this time of year. I have a fantastic sense of humour, even Dr J tells me how funny I am & how much charisma I had (what a nice compliment!) but I didn't find this funny, I found it offensive & upsetting, especially coming from someone who knows what this year has been like.

Think before you email or tweet people, just because you deal with something a certain way doesn't mean other people do (& she knows we don't have the same view on this). When I mentioned a few weeks back I felt bad for Guilianna Rancic having to have a double mastectomy, her reply was "she has a great husband and plenty of money, she'll be fine". All the money & the greatest husband in the world would not take away the pain, stress & grief that dealing with something like that would cause. I responded to the 12 days of infertile Christmas email saying I know you didn't mean to upset me and you were trying to be funny, but I'm not coping very well & it made me cry. I asked her to please not send me anything like that again & she agreed & apologised.

I know it takes all sorts to make this world go round but I would not send an email like that, it was inappropriate & not really something to make a joke out of, especially knowing the year H & I have had. When I showed H & he saw the heading, he didn't even want to read it. I try to always be sensitive & in tune with others & would only send something like that if I knew the person was constantly joking about the situation & making light of it. This is were I find that IVF & infertility is quite isolating as people (even ones that are going through something similar) don't seem to understand that everyone handles things differently & that's why I have spoken to fewer & fewer people about my feelings beside H, now this blog & several of my friends I have made on twitter & some forums.

I'm not looking forward to Christmas day but I am grateful that H has some time off till mid January and we can look forward to spending some time together and maybe go out & do some fun things. I can't wait for New Years ever as I am looking forward to saying good bye to 2011 & too welcome in 2012 with lots of hope & positivity.

Good to have all that out of my head.

Tuesday 13 December 2011

Time to make a big change with the help of an angel......

12 December 2011

YEP HERE IS A USELESS EGG, APPARENTLY LIKE MINE


So today was what has become known as the dreaded 'failure appointment'. As discussed last cycle Dr J feels that after 9 rounds of IVF/ICSI and several of those using donor sperm and our result of 4 miscarriages, it's time to make another change. That change is to look for an egg donor.

H & I are were going to take a break from all this till March 2012, so now this gives us time to explore every way possible to find an egg donor. When we do find an egg donor, Dr J has talked about the possibility of fertilising the donor eggs with half of H's sperm & the other half a donor. So say we get 10 eggs, 5 will have ICSI done with H's sperm & the other 5 with a donor. That way we are covering all bases.

It is a big decision to head down this road BUT we had discussed the possibility of this at the start of the year when we switched to using donor sperm. If that was unsuccessful, then donor eggs were the next step. We worked through the disappointment issue of not having a child fully, biologically ours then. No it's not what you expect or plan for when trying to start a family, but we desperately want a baby and will try anything or anyway to conceive one.

We have so much love to give and want a child or children, that the biology is not an issue. I know a few ladies who have become pregnant with the use of donor eggs and they have told me they love that child just as much, if not more & never think of it as not being biologically theirs.

The hard part will be finding a donor. Hopefully we can find someone in our city and the specifications are:The donor has to be aged 18 - 35 and have finished having their own family, be healthy and pretty much be an angel to want to give this gift to us. The donor undergoes a partial IVF cycle of medication to produce eggs & has the egg pick procedure, then their part is done.

LOOKING FOR AN ANGEL

If you are reading this & think you would like to do this or know someone who would, then please contact me via the contact form for more info. We are in Australia and overseas donor's are not an option as the eggs would have to be frozen & sent over here & the freezing can create damage to the eggs. Please only contact if you are GENUINE about pursuing this with us.

So Last Christmas I wished, prayed & imagined that this christmas, we would have a baby or one on the way. Christmas is here & may wish isn't. I'm almost scared to wish that this be the case next Christmas. But if would be wonderful to be sitting here & have trouble reaching my keyboard to blog because of a big ole baby bump :)

Shania Twain released a great song earlier this year called Today is your day & one of the lines from it is "Don't give up here, dont you quit" well there is no way I'm quitting or giving up on this dream to be a mother & for H & I to have our much longed for family. They say everything happens for a reason, even though you may not understand it at the time. Hopefully this is the case with our story.

Starting the new year with new hope.

Listen to a song that I take a lot of inspiration from Today is your day By Shania Twain below:

Monday 12 December 2011

IVF Round 9 A lot riding on this one & then some unexpected news....

NOVEMBER 2011

I DON'T KNOW IT YET, BUT THE STORM CLOUDS ARE ROLLING IN


5 Nov

Started medication today for another antagonist cycle. First scans shows follicles of various sizes & a bit behind schedule so Dr J ups the medication & has me back in for another scan. 2 scans later & I'm ready for egg pick up on Friday 18 Nov so 12 days of needles & scans this cycle. Dr J did a biopsy on me on 4 Nov to test for something they call natural killer cells (they attack the embryos & either stop them from implanting or if they do implant they fight the embryo & cause miscarriages).

14 Nov

Final scan today & Dr J has my biopsy result back, I tested positive for natural killer cells & treatment for this is taking steroids starting the day after egg pick up. Praying this may be the miracle fix I've been praying for

18 Nov

The usual procedure of a 7am hospital check in, 5 waiting rooms, 10,000 questions & wrestling with those damn hospital gowns and support stockings and off to a drug induced sleep I go. I wake up to the news of 11 mature eggs collected, eat my horrid sandwich & go to the bathroom so H can get me home.

19 Nov

The much anticipated/dreaded scientist phone call reveals 10 of the eggs fertilised. As I have had so many problems with the numbers of embryos etc... the scientist kindly agrees to call me daily instead of every other day with updates. All keeps looking good & we are booked in for a day 5 transfer.

I also started the steroids today & if this work's then I don't care, but they are awful. They make me feel like I have a fever although I keep checking my temp & its normal. I have turned into a human sprinkler & have to keep changing pillow cases & pj's etc.... due to the amount of perspiration coming off me. I turn on every air conditioner in the place & grab a frozen ice pack from the freezer & sit with that on my head to help cool me down. I also feel a little light headed on them but it will be worth it if this is the thing that helps grant us our biggest wish.

23 Nov

We arrive for transfer & the scientist explains that we have 2 good looking embryos to transfer back, there are still 4 not quite there so they will call tomorrow & let us know if they made it & have anything to freeze. Before doing the transfer Dr J has a small talk with us, she is concerned that now after doing 3 cycles with donor sperm the embryo quality is no better. This is our 9th attempt and mentions my age etc... & suggests that maybe we should think about using donor eggs if we want to continue. I like the fact Dr J is upfront & honest but not in a mean or cruel way. Dr J can see what this is doing to me/us & wants us to have a successful pregnancy. Besides the physical & emotional strain, there is also the financial one.

We pop these 2 little embryos back & my blood test is scheduled for 7 Dec. Normally Dr J always says to call an make a follow up appointment if the blood test is negative BUT this time I'm advised to make an appointment now for as soon as possible after the blood test. (doesn't make me feel very positive, but if I was Dr J and had done 8 'failure appointments' with us, I would start booking ahead for one too!) H & I made a decision that if things didn't work out we would have a short break as all this stress & continually catching bugs etc... had been going on since Mar 2010. We both decided that if things did not go our way, I would take a small break & resume IVF in Mar 2012, this would give me approx 10 weeks off all these medications & hopefully some time to get ready physically & emotionally to do this again.

30 Nov

Again the 2 week wait limbo rolls on, I pop in my iPhone calendar the date I can do a home test & am surprised when the reminder pops up saying I can do it this Friday 2 Dec. I go & collect the post & to my surprise there is a letter from my Dr with a slip for a test to go & have an echo cardiogram. As it has been several weeks since the x ray & the virus & the Dr never got back to me I assumed my case history must have looked OK so forgot about that issue. Being someone who likes to be organised & get things down ASAP I was able to get a booking to have the test that same day. I explained to the lovely lady doing the test I was in the 2 week wait and I needed to keep stress to a minimum & she said she could have the test results faxed to my Dr by 5pm that night.

The Dr called me at 5pm & when there is nothing wrong they will tell you over the phone 'its all good'. Instead the receptionist said could I come in the next morning to see the Dr & discuss the results - mild panic set in as I knew this meant something was not right.

1 Dec

We started the day at the Dr's office to get the test results, while waiting I sent H off to grab some home tests as we didn't have any & tomorrow morning was POAS

I go home a digest the news & let it all sink in & get my head around it. About 4pm I go to the bathroom & discover I have started bleeding. I remain very calm & hop in the shower then just start crying and can't stop. H is at work & he is already concerned about me & the Dr's diagnosis from that morning so even though he tells me to call him for anything, I don't want to break this news to him over the phone while at work. I need to talk to someone but don't have many people I can discuss this with. I call one of my closest friends & get her voice mail, I try another friend and as soon as she answers I just start sobbing ( I managed to get out H & I were both OK as we all had been through an awful time a few years ago when one of our friends husbands was killed in a tragic accident). The talk helped to calm me & it was grat to have a friendly ear listen with no judgement.

The diagnosis that morning plus the bleed on the same day, especially when I felt I had so much riding on this cycle to be the one so we didn't have to go down the path of donor eggs etc.... was just all too much to take in one day. H always trying to be positive & cling to some hope reminded me we did have 2 embryos put back so this may just be one failing. Well Fri 2 Dec, when I was meant to do a home test was totally not necessary as the bleeding had got far worse coupled with very bad cramping.

I called Dr J's rooms to report what was happening and I was advised to stop the steroids & the clexane injections, so it was obvious by this that it was definitely being thought of as a failure. The next few days H & I just cried & talked a lot. We were both devastated & H who is the super positive one, was himself even feeling a little cheated at how everything had gone down in one day.

6 Dec

I went for my blood test a day early as I also had to have a ton of blood taken in relation to the heart diagnosis. I expected the call from the clinic that afternoon to say the pregnancy test result was negative BUT what if one had made it? I would be shocked as it would really be a Christmas miracle. The call came and I got the news I was expecting. The hormones coupled with the confirmation of the failure left me an emotional wreck again. H is the strong one & even he was having a hard time dealing with all this & was finding it hard to cope as well.

9 Dec

Back to the Dr today for the blood work in relation to the heart condition. All my blood work looked great except for my triglyceride's. Again she told me it is very positive this has been detected so early BUT she does not want to take any chances with it getting worse & also wants to find out what can be done about it or fix it altogether. A referral to a cardiologist was given & with a stroke of luck at this time of year was able to get an appointment for 29 Dec, much sooner than expected. Over the next few days I started emotionally feeling a bit better but tears would strike without warning at anytime.

My 'failure appointment" is today 12 Dec & this brings everything thus far up to date. From now on all posts will be in "real time" so you can share the fun of this roller coaster ride of emotion with me.

Will keep you posted!

How catching ANOTHER virus may have saved my life

OCTOBER 2011


I KNOW THE X-RAY DIDN'T LOOK LIKE THIS BUT THIS IS HOW I IMAGINE MY HEART LOOKS THESE DAYS


22 Oct

The day after returning from a trip I started to feel sick with flu like symptoms. Something nobody tells you is the drugs & medications from doing IVF (especially as many times as me) weakens your immune system & you catch everything. Went to Dr straight away as we were starting IVF Round 9 in November & I wanted to be over whatever this was. Dr thought it was a virus, gave me some antibiotics & sent me on my way.

29 Oct

1 week on and medication has done nothing and virus getting worse, not better. Dr was about to test me for whooping cough (as that's how I presented & sounded) but then I reminded her I had it a year ago. Possibility it may be a bacterial virus so a change of medication & a nasal swab.

2 Nov

Trip back to the Dr for test results and it seems like a very nasty virus that won't budge so another medication change & a chest x - ray ordered. When the x-ray came back it showed I had a partial collapse of my lower lung BUT the thing that concerned me the most is my heart showed to be larger than what it should be on the X-ray. I lost a dear friend many years ago to a heart condition (cardiomyopathy) he had been young, fit & healthy & just collapsed one day so I was a little scared. Dr tells me she will review my medical history and the x-ray's I had 1 year ago and get back to me about what to do next. Before we do anything she wants me fully recovered from this virus, before doing any further testing.

5 Nov

Dr J knows I have been sick but am slowly recovering from this virus, we get the go ahead to start the needles for this round of IVF as by the time egg pick up rolls around I will be fully recovered. What I didn't know yet is getting this virus would be a blessing in disguise & help diagnose a problem that may never have been found.

They say everything happens for a reason & this time they were actually correct.

IVF Round 8 being super positive for this one!

SEPTEMBER 2011

Well as last cycle turned out to be an IUI and we did not have egg pick up etc.. I was able to get started on another round of IVF straight away. It was another antagonist cycle & the jabbing & scanning all went well with no hiccups or delays. Last day of shots was 10 Sept & I'm all booked in for egg pick up on Mon 12 Sept.

This being my 7th egg pick up I think I could do all the pre-admission paperwork blindfolded & I should record all the answers to the pre-op questions so I could just hit play for the numerous times we go through them. On the funny side I always think of Seinfeld & the episode where he complained about all the various waiting rooms at Dr's offices before you actually get to the Dr's office. Well this is what day surgery is like. There is the first waiting room where H can stay with me & we do the initial check in paperwork. Then the volunteer who knows me on sight by now calls my name to take me to waiting room 2. Then a nurse calls your name and its off to waiting room 3 where you do the dreaded yes/no questionnaire & get your wristband (because I'm special and have allergies I actually get 2 wristbands!)

DOUBLE WRISTBANDS? DOES THIS MEAN I GET A MEET N GREET WITH SOMEONE FAMOUS? Ahhh NO!


Now you're given your basket of goodies & shown to a bathroom where you get to wrestle with a hospital gown (swear you need a medical degree to do these things up) & pop on your sexy compression stockings & booties.
HOSPITAL COUTURE


Then you guessed it! Its off to waiting room 4. One of the scientist's from the clinic comes to see you & have a chat but I know everything there is to know by now so we usually have a little joke & they wish me good luck & hope its the last time I have to do this. Then the anesthetist  calls you to go over half of the questions you have already answered & give you a quick exam & explain the anaesthetic process to you (which is also now pretty quick as they know me too!) Back to waiting room 4 until you are called to walk down to theatre! In keeping with being extra positive this round I played some songs on my iPod whilst waiting that really inspire me. Firework by Katy Perry, Today is your day by Shania Twain & Someday Soon by Natalie Bassingthwaighte.

Finally off to theatre I go & up on the table I hop, your wristband is checked a million times (well it seems that often) & you are asked to state your name as many times as well. The anaesthetist I have today I've had a few times before & the nurses were giving him a hard time, so I told them to be very nice to him as he was the sleep fairy. He roared laughing and said he didn't know about my calling him a fairy & we had a good laugh which left one of the young nurses perplexed. We both had to explain to her the meaning of 'fairy' as she had never heard that term (yep thanks for making me feel old right now!) Dr J rocks up all smiles & super positive & off to the land of nod I go.

Wake up in recovery & from memory we got about 11 eggs again, my favourite part of recovery is finally getting to have some water as that's the hardest part of fasting for me. They won't discharge you from day surgery till you have eaten & been to the bathroom. So always keen to get out of there I eat my yummy sandwiches (NOT) and get them to call H to get me.

Well what can I say but from 13 Sept on the scientists called with fertilisation results & as per usual the number dropped off each call BUT we did make it to day 5 for a transfer of 2 really good looking embryos on 17 Sept that Dr J was very happy with and a few were still hanging in there that the scientist would call us about the following day.

WORE MY TORI SPELLING LUCKY CHARMS NECKLACE MY GREAT FRIEND IN THE USA HAD SENT ME


In the spirit of extra positivity I wore my Tori Spelling lucky charms necklace my good friend from the states had sent me & played my own music to help calm me & focus on it, & not the discomfort of transfer. It worked & was the easiest transfer I've had. Now the 2 week wait began & my blood test was scheduled for 30 Sept.

I was very emotional & all over the place during the 2 week wait which is down to the hormones (unfortunately these can be good pregnancy hormones or bad period ones - no way of telling). Mon 26 Sept arrived & that meant I could do a home test & my extra positive thinking had paid off as two magic lines appeared. WOO HOO but must not get too excited due to past history. Curious I repeated the home test on 28 Sept & the 2 magic lines were even darker meaning the HCG level was rising. Then as always the following day some bleeding started, I went for my blood test as planned on 30 Sept & got the call that yes it was positive but the HCG level was low so I was having another early miscarriage.



So its off to see Dr J on 12 Oct for ANOTHER 'failure appointment'. I'm actually at the stage where I'm scared to continue as the pain from a negative result or loss is so horrible I don't know if I can go through it again.

IVF Round 7 that became an IUI......

AUGUST 2011

A NEW CHANGE OF PLAN MEANS I WON'T BE A PIN CUSHION THIS TIME ROUND

2 - 26 Aug

Of course after each negative result or loss one of the things I dread the most is that FAILURE APPOINTMENT with Dr J taking us through all the medical info & scientists reports & discussing what went wrong & what we can try next. The loss this time is being blamed on my getting sick with the gastro more & it more than likely caused me to miscarry again. Prior to getting sick everything with the scans looked good & one of the things Dr J always comments on is how great my lining always looks & says "If I was an embryo that lining is perfect & I would stay!"

I am sick & tired of this whole process & feel like a pillow that has had its stuffing ripped out BUT I can't give this up as I have said countless times we want a child so much - so what do you do?

It was time to get serious & Dr J made a list with about 6 options and we are starting with option number one. That is doing a minimal stimulation cycle. Instead of injections I will take clomid tablets with the aim being for me only to produce 4-6 eggs instead of the 10 or so they normally want. Dr J is hopeful that trying this method of less stimulation producing less eggs mean's better quality ones.

A lot further down the list are things like donor eggs. We briefly discussed this & it is something I would do, but to be faced with the fact at that moment that you may never have your own biological child is quite painful & hard to take. Yes I know being a parent is more than biology but again, when you meet & marry your partner & plan a family one day - well you don't plan for or imagine you will have to make decisions like this.

I had a scan Mon 8 Aug and there were a few small follicles so I go back for another scan on the 10th. Dr J did tell me that this may not work at all, but after 6 attempts we decided it was worth a try. We may get nothing and not be able to do an egg pick up so this all would have been a waste of time. If we only get 4 eggs & the quality of them, combined with our other issues is no better I will have nothing to transfer.

Medication this cycle was a tablet called Clomid & I was looking forward to a cycle with no needles, unfortunately the clomid has made me feel quite sick and a few hours after taking it each day I get a shocking migraine......... (there had to be a catch didn't there!)

So as we were warned, today 12 Aug the scan confirmed this new protocol did not work & only produced 2 eggs which is not enough to go ahead with an egg pick up. Feeling frustrated by this news, Dr J suggested so all the drug taking had not been a total waste of time an IUI (insemination) with the donor sperm. I'm booked in for this tomorrow. Dr J thinks the chances of an IUI  working are very slim but we may as well give it a try as in this gambling game of fertility one never knows.

If this does not work (& all the stats do not look good) then its back to antagonist cycles & IVF/ICSI till it does work.
Not ready to give up yet

Of course as expected just before it was time to do a home test I started bleeding so we knew it was another big fat negative. Well you don't know till you try.

Bring on Round 8 of IVF/ICSI..............

Sunday 11 December 2011

IVF Round 6 The big change leads to another loss......

22 June 2011
HOW DO YOU MEND A BROKEN HEART?


Writing was getting a bit more difficult for me now so these posts going forward will be formatted a little different than the previous ones.

Well here we go again..... after the failure of round 5 I have kind of been hiding in my cave and not able to talk about the past failure or even want to write about it. Was just too painful.

Round 6 kicked off on the 6 June and all went smoothly this time round with scans & medications.(a positive for once) It was another antagonist cycle and Dr J upped the doses of puregon this time. Egg pick up went ahead on Monday 20 June and we got 12 eggs. This was our first cycle using a donor (choosing a donor is an interesting process, they give your profiles with physical descriptions, interests etc.. its kind of strange picking something so important like you are reading a resume & hiring someone for a job - something I am accustomed to from my career)  I have been fairly relaxed this time around and had not been stressed this cycle, then today I got the call from the lab with the results. I really wish this news had been given to me the other way around.

The scientist called to say out of the 12 eggs 11 had fertilised to which I thought (woo hoo) then came the BUT. She then went on to explain 6 were abnormal so at present we had 5. Funnily enough the donor sperm we chose did not thaw properly and we still had to have the ICSI process done using it like we did with H.

So it begins again, the waiting & worrying about what the number will drop down to as always happens & having to hope & pray I have something to transfer back on the scheduled day 5 transfer day of Saturday 25 June which is what is booked at present. We both want this so badly and if this does not work of course it will be into another round but I do wonder how much more failure & heartache I can cope with.

After egg pick up & fertilisation numbers where phoned through, on Thursday 23 June I got a call from the clinic telling me the numbers had dropped to only three remaining & they were unsure that they would make it till day 5 so could I come in for a day 3 transfer again straight away. Hanging up the phone & bursting into tears I called H to meet me at the clinic and got some amazing support via email & twitter from actress Elisabeth Rohm who has been through IVF & has written about it (it was a blog post speaking about this that led me to contact her & to my surprise she responded & has very kindly given me some much needed support. The kindness of strangers really surprises me at times.

My last cycle had been a day 3 transfer & was not successful so I was not feeling very positive at all about this. 2 were put back & it was time to sit it out & wait. I had such a bad feeling I did not even keep the photo of the embryos like I had been in the past (starting to get superstitious you see).

I started getting stomach pains on Monday 27 June & by Wednesday they were unbearable, we called Dr J who was at the airport on the way to a conference, concerned an emergency appointment was made for me to see a colleague. After checking me out he concluded that all was fine with IVF & he thought I had a gastro bug that had been doing the rounds that had stomach ache the same as labour pains. I thought it strange as I had no other gastro signs until we were leaving the hospital where his rooms were & I had to make a dash to the ladies were the gastro started. I yelled out to H as I could feel myself about to pass out. Next thing I hear is H & a lady on other side of toilet door. H had got a nurse & they both talked to me until I could unlock the cubicle. The nurse wanted me to go lay down but I just wanted out of hospital (some reason I always end up staying there longer than expected!!) So H got me home to bed. The Dr advised I was to stay on nothing but electrolytes for a few days, this was fine by me as I was not hungry.

By Sunday 3 July the gastro was no better & the Dr decided to prescribe something to help it as he was very worried about me getting dehydrated. I was so worried as how could a little embryo survive this? Next day 4 July it was time to do a home test & to my shock it was positive. Not believing this to be true, I did home tests for the next few days and they were all super strong positives. My blood test was on the Friday and I started to have a little bleeding but was told by the clinic not to stress. Blood test came back very good. But of course the bleeding got heavier & this cycle ends with my having another early miscarriage.

I do not know if anyone can understand how this feels, especially for the third time. Again there were a lot of tears & bouts of anger & for a few days all I could think about was taking every pill in the house which scared the crap out of me.I was in so much pain & I just did not want to go on for a few hours there. I hate that as it makes me feel so damn weak & pathetic. I made an emergency appointment to see my therapist and cried all over her for 30 minutes while she told me she thought I was coping well considering & that everything I was feeling was normal. She did prescribe something for my anxiety as the crying outbursts were uncontrollable at times & I needed something to take the edge off.

On top of all that my birthday was looming in Aug, I would be 39. Last year on my birthday I was let down by the first round of IVF having not worked, but was so positive that by this time next year I would have a baby or at least one on the way.

In despair one afternoon I made a tweet along the lines of "Why is this happening? Its so hard to take, will keep trying but losing hope". I got a response from someone who follows me on twitter who is actually a person I know & am friends with. Her reply to my tweet (which was just a statement, I was not looking for a reply) upset me to the point of my bursting into tears. I'm not really the type of person to cry over things like this, but anyone who has gone through this knows how raw & emotional you feel. So her reply of "Chin up you have a great husband & cats & the use of your arms & life will be fine if you don't have a baby" just shocked me. I have never asked anyone for sympathy, we just happen to be unlucky enough to be in this situation. This is someone I've known for 10 years & always been there to lend a supporting ear etc... & no matter how small a problem I would never say or tweet something like that.  I already know I have a wonderful husband & I know people suffer far worse things such as battling terminal illness.

I just could not take anymore and that was the final thing that really made me shut down & disconnect from sharing my feelings about this with anyone besides H & 2 friends overseas who are very supportive via email & skype.

Besides the emotional roller coaster this has put me on that I was not expecting, I did not expect this journey to feel so alienating & to get so little support from the few people I know I told. I don't want pity or people feeling sorry for me. I guess I would just like some support offered to me like I offer to others when they are going through a hard time. I didn't realise that was such a big ask. Needing some place I could say what I felt if needed, I decided to block this friend from twitter so I didn't have to deal with an upsetting tweet again. From here on in twitter would be a great support to me & I would connect with some others going through the same or that had been through the same & have all been lovely. Something I never expected to gain from a place I used for fun & to keep up with my favourite celebrities. Again the kindness of strangers....................

I also decided to tell my mother we were taking a break, as I have mentioned previously we have a unusual relationship (but that would be a whole other blogn & I don't want to go off track). I had to accept many years ago she is not the type of mother most people have or I want. She was supportive asking questions & showing concern for all the medical procedures, but I just couldn't handle hearing her say again, when I told her about another miscarriage that it was for the best as no one would want a retarded or sick baby.

Looks like round 7 is on the way.........................

IVF Round 5 Really? Is the universe playing a cruel joke?

APRIL 2011

A BUNNY & EGGS WITH EASTER IVF - I THINK ITS APPROPRIATE!


13 Apr

Pain post operation after all the set backs is now all better. After 9 Days of waiting and no period I called Dr J for advice. I was sent off for a blood test on Monday and being me of course that was not easy. I went to the collection centre I always go to as the ladies there know me well and never have any trouble getting blood. On this day everyone was sick and there was a young girl filling in who got things off to a great start by looking at the test form and saying 'ohhhh your here to find out if your pregnant how exciting!!!' Anyone who has been through a struggle with infertility will know how those words made me feel - I nearly burst into tears. I really do not think they should say thing like that as they order that type of hormone tests for many reasons.

Anyway after much poking, prodding & several jabs she could not get blood out of me, I ended up having to go to the other pathology company next door and then wait in line there, but at least the woman knew what she was doing. A test that normally takes about a 30 min round trip took 1.5 hours.

Test results came back today and Dr J informed me I was ok to start cycle 5 (Yay finally)  So tonight I had my first shot of puregon (275) and am officially on my way.

Please let number 5 be my lucky number. I know there is a chance of things not working again as the aspiration H is doing is no guarantee of a better outcome BUT this is our last shot before we move onto using donor sperm so we both really want this to one to work as if it doesn't it will feel so final moving on to this next step.

18 Apr

After 6 days of jabbing away (now 2 needles per day since starting the antagonist drug orgalutran on Saturday morning) it was time for the first scan.

As of today it looks like I only have about 6 eggs, which is less than usual, ovarian drilling is supposed to help with over stimulation and too many eggs being produced. So it will be time for another scan on Thursday to see whats happening and if there are any more eggs showing. Hopefully there will be some good ones there and we can go ahead with egg pick up on Monday 25/4. No point stressing, just have to sit & wait. I should be used to that by now as this whole process is a waiting game!

21 Apr

Got home from Dr J today & was so distressed/upset/confused that I had to have some Valium and hide in bed for a few hours. I think I am just a weakling and can not cope with all the changes & variables IVF treatment presents & is NOT explained to you before you start. I am a planner & so is H and we have always made plans to achieve our goals, with this the plans change all the time & it gets so confusing. I am so done & over all this, I really don't want to keep doing this to myself BUT I have no choice but to keep going because we both want a baby so very much. I really try to be tough but feel I am failing & this is only my 5th time round. I have been so calm and tried not to stress so far this cycle but it all went out the window today.

Had scan this morning and Dr J says there are only 4 decent size eggs, need to scan again Saturday and see if any of the other few have caught up. If they have not then the cycle will be cancelled as the feeling is it would be a waste of time to go in for 4 because of what has happened previous cycles with my results (get 11 good eggs to fert and end up with 1 or 2 embryos to transfer) After waiting since January to do this cycle the thought of it being cancelled & all this being for nothing just gutted me. I don't think I can handle another delay. And knowing you have taken provera for 2 weeks which makes me feel sick then doing 12 days of 2 shots per day with nothing to show for it............................

The other thing that has me confused/upset is the plan all along before & after the ovarian drilling was that H have aspiration this time. Today however Dr J thinks that drilling has obviously made a lot of changes to the eggs due to the lack of numbers and if we do go ahead that we should not change anything else this cycle - that the eggs/drilling is change enough. So I am left feeling that if it does go ahead and I get a BFP I will just have another miscarriage as they concluded a while back that this was because of H & his fragmentation issues etc.... That's why we were doing aspiration and even got all the info on donor's as they advised and did the counselling etc.. So Dr J is having another discussion with the scientists did this report in first place and will tell us what they think when we go back for scan Sat.

I am just upset & confused and feel this is never going to happen for me, nobody but H understands how emotional & frustrated I'm feeling.

23 Apr

Had my 3rd scan this morning, everything was riding on this. I now have 8 good size eggs

The relief that we are going ahead is great, however there is still a lot to worry about. I have to hope the eggs they get are good and then of course see how the embryos progress and how many are left for transfer on day 5 (as usual I need 2 to transfer & I would LOVE some extras to actually freeze, has not happened yet so would be an amazing bonus if it did happen).

Tonight I had my last shots, then what they call the trigger shot (ovidrel at 7.30pm - not sure or can't remember why but Dr J always has me do 2 of these). Apart from the procedure Monday I have a needle free week YAY!!

If all goes to plan this is the schedule:
Blastocyst transfer is booked for Sat 30/4 (hoping for 2 to transfer fingers crossed!) after transfer I begin on aspirin & clexane injections everyday.

Blood Test is scheduled for Friday 13/5 (That week is our 12 year wedding anniversary/15 years together - we got married the same date we met so we could keep the same anniversary date!) of course I don't want to get my hopes up but what a wonderful anniversary gift for the both of us this working would be.

Hoping, praying & have everything crossed.

25 Apr
NO PRESSURE KID, JUST ALL OUR HOPES & DREAMS ARE RIDING ON YOU

First thing this morning the scientists phoned me to say we only had 1, 8 cell embryo left & to come in to Dr J & the clinic ASAP for a transfer. Needless to say although I was warned this may happen I got very upset about it all. I guess with my surgery to improve things & H's procedure I may have had higher hopes for better results & they all came crashing down. I have 2 great friends overseas how I was able to email about my upset & disappointment & a lovely friend I had made via twitter who was sending me nice tweets about trying to stay calm etc.. all that really helped.


H & I have less faith in this cycle then we have had in any of the previous ones for so many reasons, it really would be some type of miracle if this one worked.

I already have my 'failure appointment' appointment booked with Dr J for Monday 18/5.


8 May

I had grave doubts about this cycle with everything that happened & our results. I was waiting till tomorrow to do a home test and confirm my suspicions that it had not worked out BUT a tiny little part of me said with it being our anniversary wouldn't it be just great if I was wrong and I was able to wake H up with the news of a positive test......

Today I started bleeding and I was pretty sure that meant it was all over, of all days to get confirmation that you will not be a mother anytime soon, REALLY on mothers day universe? REALLY??!!!! I spent the day crying on & off. I barely made it through lunch with the in - laws for several reasons. The cramping in my stomach was a constant reminder that things had not worked, H's parents don't know we are doing IVF for several reasons but mainly because they are older than my parents and  H's Dad's health is not great and we don't want to cause them extra stress plus I have heard my mother in law speak of friends children doing IVF & it not working so don't think she is a believer & there is a religious issue too I'm a bit worried to raise. Easier to keep it from them as we don't need extra drama! 

So there I was with my stomach cramps, sitting in a restaurant full of Mothers celebrating the fact they were Mothers. My in-laws then started chatting about such & such having a baby last Friday and this persons new grandchild etc etc etc..... I had to keep going to the bathroom as I was afraid I would break into tears at the table. Just had my cry in the bathroom like a good girl & lucky I do suffer allergies as that excuse comes in very handy at times like these.

In the past I have had bleeding and still been pregnant so H was still clinging to a shred of hope that may be the case this time although I knew it wasn't. Dr J told me on the day of transfer if I started bleeding to do a home test before I gave her a call. Well the following morning I did the test and as much as I was expecting it, only one lonely line showed up - the line that crushes any shred of hope you may have been clinging on to, the one that says - yep you are NOT pregnant.

I was expecting this result but it still hurts so very much. 5 full IVF cycles and 2 operations later and all I have to show is 2 miscarriages. I don't understand why this is so hard. I do not know what to do now. I have to be strong, I can't give up as we want this too much. Guess its just another call to Dr J to tell her the bad news then another meeting with her to discuss what went wrong and what to do now. Our anniversary trip for a 2 night get away is today and we both tried to use that as an excuse to get by, but after dinner that night we both broke down & had a good cry together in disappointment.

I was so naive when I started this road to IVF as I had NO idea what it would actually be like & the feelings & emotions it stirs in you, not being sexist but it is worse for the woman as she has all those crazy hormones running around her system as well screwing with her. Just need to grieve, revover, dust myself off & get back on this crazy emotional rollercoaster.

More recovery problems.....

8 April 2011

TOILET HUMOUR ANYONE?!

Recovery was going well and things were all positive on my last appointment with Dr J last Friday. Then Friday night when I went to the bathroom (hope this is not too much information BUT I did warn you I would tell everything here warts & all!) there was a large amount of blood after I had a bowel motion. I also had really bad stomach pains for hours after. I have never had anything like this before and thought it was very strange but tried not to panic.

It continued to happen so thinking it must be something to do with all the surgery I called Dr J Sunday morning & advised what was happening. First thing was getting me to stop several of the medications I was taking and go for a blood test. By Tuesday morning the bleeding had stopped and my blood test was normal but Dr J had spoken with a gastro Dr and wanted me to go & see him & possibly have a colonoscopy.

 I just could not face another procedure after the past few weeks (I have had a colonoscpy before so I know what it entails). I explained all this to Dr J and after patiently listening to why I just didn't want to have another procedure, I go the OK not to see the specialist BUT if the bleeding started in any way again I was to go straight away.

The only remaining problem is the amount of pain I am in with my stomach which is gradually getting worse each day. It is now at the point where I am using heat packs and can not sit up for too long because the pain is too much. I guess logically there are a few reasons for it, I finished all pain medication last Friday and I also stopped provera. Dr J and the nurses in hospital also told me that the removal of endometriosis is very painful and can takes weeks to ease. Then there is the ovarian drilling, the whole point of this procedure in the first place. Stopping the provera should be bringing on a period so if there is activity like pmt cramping it also could be worse because of the drilling.

At the moment the idea of contacting any Dr and telling them about this pain and it resulting in them wanting to do tests OR put me in hospital is just too much to take. If I never saw another Dr or hospital again in my life it would be too soon. So I will wait this out a few more days and hopefully it improves.

Friday 9 December 2011

Being me of course recovery did NOT goes as planned

SEEMS LIKE THE PERFECT IMAGE FOR THIS POST!



5 APR 2011

In my last post I talked about the surgery I had on Wednesday 18 March. Over the next few days I developed bad lower abdominal pain that got worse each day. I persevered thinking it would go away. On top of this I started to get hot sweats, I would be roasting and look like I had been drenched by a bucket of water, yet I had no temperature?

By Sunday I thought I better contact Dr J and she told me to go to emergency straight away. I had sent H off to visit his parents and did not want to stress him and tell him to come back so I waited for his return then told him what was going on. At about 5 pm we headed to emergency at a public hospital. (although I have top hospital cover, to present at emergency at a private hospital there is a charge of about $200 that you get nothing back on, also any tests done while in emergency, you are also out of pocket the full amount, with the amount of money we have spent on IVF so far we just could not afford this extra expense).

I was very sick when we got there and kept fainting but the lady at admin told me there was no where to lay down. Triage then saw me and told me that my case was an urgent one and the wait would be about 30 mins and again told me there was nowhere to lay down. H propped me up in the chair and I kept blacking out in pain - the 30 minute wait was 4 hours. After an exam the Dr wanted to contact Dr J and discuss my history, I was finally put in a bed and on fluids and pain killers (unfortunately they totally butchered the cannula and my one good vain, it hurt so much I could not move my arm). I told them I had not eaten since 1pm and they told me not to eat in case I needed surgery.

The emergency Dr comes back and asks me why I did not tell them I had stitches in my bowel? Ummm because this was news to me. She proceeded to tell me that during surgery my bowel had been nicked and then stitched and now they were worried my bowel was leaking. I freaked out for several reasons, mainly because Dr J is such a great & thorough Dr I could not believe I would not have been told about this this when wee went through everything post op?  At this stage they were going to transfer me to the private hospital where I had the surgery and that way I could see Dr J, I was happy with this.

A heap of various specialist all came and poked, prodded & examined me and I also had an MRI with dye contrast. I was then told they did not want to transfer me and they would treat me. By this stage it was 2am, so I just agreed. By 4am I was finally taken to a room for the night to get some sleep but the nurses kept waking me every hour for obs. By 7am after having no sleep for 24 hours and nothing to eat I had a massive migraine as well. The surgeon that was supposed to come & see me at 8am never showed up. I took my migraine mediation and got an ice pack. I was then sent for a very invasive test with dye that was so revolting I will not describe it.

By midday the specialists arrived to say the test showed no leak in the bowel BUT the test was not 100% so I was to stay for several day's for observation. I did not feel good about these Dr's I did not know, I was exhausted & in pain and I just wanted to go home & sleep so against the Dr's wishes I for the first time in my life rebelled & discharged myself . We called Dr J as soon as we got home and was horrified when we told her what they told me about my bowel being nicked during surgery. Dr J assured me this did not happen and if it had I would not have been allowed to leave the hospital. I was upset about being told the wrong info and having stressed for 24 hours about leaks and the possibility of having bowel surgery. Dr J told me to get some rest and come in  straight away the next morning.

Dr J ordered tests and examined me herself and consulted with some fellow surgeons. The outcome of this was to have another laparoscopy. So one week after my first lap I was wheeled back to theatre for my second.

Although I did not feel like laughing the trip to pre op from my room was hysterical thanks to a disorderly orderly (anyone seen that classic Jerry Lewis film?) the guy took ten minutes to get the bed out of the hospital room (helps if you open both doors!), could not steer the bed properly and kept stopping & starting & putting brakes on & off (I knew something was off as the nurse was getting very short with him). When we made it to the lift he wheeled me out on every floor the lift stopped on even though the nurse and H kept saying to him "we want level 2". H told me that the cords attached to the bed were not rolled up and at one stage got wrapped around a trolley and we had that attached to the bed following us for half the trip. Many things like this ensued and to kick it off this guy who loved using the brakes so much did not switch them on when he left me in pre

When I woke up I was told that where they had removed the endometriosis & adhesions from the bowel wall, for some reason a section of the bowel had become attached to itself and they had to separate it. They also found some type of nodule they removed and think both of these things were causing the pain. For the next day I was on a drip for pain relief with a button you just pushed anytime you were in pain (great invention!) The next few days were very painful and I was told that was to be expected after 2 surgeries in a week.

I stayed in hospital till Saturday & was sent home on a regime of pain killers, anti-inflammatory, anit-biotics - lets face it I rattled. Over the week the pain from the two procedures settled down and last Friday I went to see Dr J for a check up. Happy with my progress I was told if I was feeling up to it we could start our next round of IVF.

So as of Saturday I stopped taking provera and am now waiting for period to arrive so we can finally get this show on the road ( I have only been waiting since Feb to do this cycle!) Although the past few weeks have been awful, I would have eventually needed this procedure anyway to remove the endometriosis and adhesions. I could have done without the complications though! So hopefully the ovarian drilling and removal of everything else, coupled with H having the aspiration procedure done will result in a successful & much longed for positive outcome. I know I am hoping & praying........

Surely its time now for something good to happen!

Ovarian Drilling and what other nasties were lurking

PLEASE TELL ME THEY DON'T USE THIS!?!

17 March 2011

Today I had my surgery, checked in to hospital at 12.30pm and in to theatre at about 3pm. When I was on the table Dr J checks your name and asks some questions for everyone to hear. One question is what are you having done today? I was having so many things done I could not remember all of them & the procedure names so I said "Ovarian drilling and 1 million other things you suggested!' everyone in the room cracked up including Dr J went out to it to the sounds of laughing!

Woke up in recovery about 5.30pm in a fair bit of pain. They did the drilling, looked at which tube was blocked (and found its not anymore.) They found a lot of adhesion's and a lot endometriosis and removed it all. Got home at about 8.30pm tonight, very sore and getting in & out of bed is what hurts the most - damn having to go to the toilet!!

Very glad I had the procedure and hoping & praying it helps with our next cycle, number 5 but who's counting?

An unexpected & unplanned break from IVF & big things to consider

SO MUCH TO CONSIDER & THINK ABOUT



20 JAN 2011

Today was my follow up (failure) appointment with Dr J. Lots of stuff was covered and my head is still spinning. It was all a bit emotional talking about everything that happened last cycle especially as I was slowly getting over it & starting to feel a bit more human & it just bought everything back to where I was when it happened. Also all the options I am faced with left me feeling exhausted and with a migraine & again making it out of Dr J's room n enough time to burst into tears at the lifts behind my sunglasses. I just crashed when we got back in.

Firstly I am to give half my body weight in blood tomorrow to look for reasons for recurrent miscarriage.  H is also booked in for some testing, in particular one that looks at fragmentation. So we have to wait for these test results before we move forward.

Depending on my bloods I may be put on a steroid next cycle to help prevent miscarriage. The results of the tests H is having is the big one. One option for next cycle is doing sperm aspiration (or ball drilling as many of the forum users put it!) where they surgically remove sperm from the testicles.

If the tests comes back with not good results using donor sperm would be the next step. I have a blocked tube so I would have to have a procedure where they flush me with dye so they know which tube is blocked. Then we could do a cycle of IUI (insemination) with the donor sperm, this would be much easier on my physically than IVF.

 Of course I am not sure how I will feel if we do have to use a donor, H said he would be disappointed obviously, but if that what we have to do to have a child then he is willing and wants to do it. Selfishly I want my own biological child with H and the thought of this never happening is pretty major news to digest. My head was filled of thoughts of why is this so hard for us? I know being a father is so much more than biology (as I've had little to do my whole life with my biological father & am far closer to my stepfather who came into my life when I was 12). It's just when you meet the person you want to spend the rest of your life with & plan your future which includes having a family, the thought of things like having to use a sperm donor don't cross your mind.

So lots to think about but I am trying not to stress till I get the actual results.

1 FEB
The results for H are not good & donor sperm is now being recommended to try. Dr J is sending away to the scientists for a full review of our case file & will get back to us when she has that result what to do. In the mean time to get the ball rolling, you are required to undergo mandatory counselling when making the choice to use donor sperm. Wanting to not waste time H & I decided to get booked in for this straight away so if we did go this road it was taken care of as the appointments have to be 2 weeks apart then a further 2 week cooling off period applies.

There was lots of discussion tonight about the news we got today, near the end of our discussion H said:

"We want a family so we will try this, if this does not work we will try something else, then when we have no options left we will look at adoption and if that does not work out I will just steal us a baby" (please note he is JOKING about stealing a baby!!!) My husband the problem solver, he is amazing and its times like this that remind me why I love him so much - he always knows the right thing to say and can always make me smile.

We got our appointments with the counsellor booked in and I can honestly say H & both felt they were a waste of time. Nothing a counsellor could say would change the fact we had decided to go down this road if need be. He was a very nice counsellor but H & I strongly disagreed with his view on telling the child as soon as possible (he suggested 4 was a good age) that they are the product of a donor and that we wanted them so badly we had to have someone help us & give us a special gift. We understand for medical & other reasons if a child was conceived via donor we would tell them one day but at 4? No way. It annoyed H & I both that he kept pushing this advice on us & when we left we both almost said in synch "tell them at 4?? no way don't agree with that!"

12 FEB
We have an appointment with the fertility clinic on Thursday to go through the donor selection process then after that we are off to see Dr J to discuss this cycle. Dr J has reviewed the scientist report now & has suggested that we do another IVF cycle using the donor sperm.  I am hoping and praying this will be the answer to our problem

17 FEB


I know the odds of this working are more than likely not the best but Dr J thinks we should give it a shot and I would like to know we tried everything before going to donor. Maybe we are both clutching at straws but of course my ultimate wish is to have a biological child with H. If this does not work then, it is not to be and we will make a family with the assistance of a donor. I am already mentally preparing myself for the fact this may be another failed cycle or possibly a miscarriage. I can only cross my fingers this works for us.

If this last shot doesn't work at least we have already come to terms with the fact of switching to donor and will be able to move forward with no issues.

As for the medical side of things I cease taking provera tomorrow and just wait for my period to arrive & start another antagonist cycle.

11 March
So this IVF cycle seems like it is never going to start. After being off the provera for 3 weeks and still no bleed, I called Dr J and asked for some advice. A blood test was ordered ASAP to see where I was at in my cycle and then to come in for a scan.

We saw Dr J this afternoon and my blood test shows that nothing is happening, I have not ovulated and my levels do not show a period  approaching anytime soon. So it is back on provera for another 14 days then hopefully something will happen.

While there today Dr J discussed with me a lecture & info about something called ovarian drilling, amongst other things it is supposed to help with implantation and has been very successful with people with pcos like myself. I said I was willing to have this procedure (basically I will try anything that might help) however it means a laparoscopy. Dr J said if we were going to do this then it would also be a great time to also have 'a good look around' in there whilst I am under. I have had adhesion's in the past and so we want to check for them, endometriosis and see which of my tubes is blocked.Not wanting to waste time I said lets do this & I am booked in for the surgery next Wednesday.

I really hope this procedure coupled with H having aspiration results in a success this coming cycle. I really want to to do anything to increase our chances and I figured if I did not do it this time and we still have no luck, it was something I would have to have done down the track anyway, so lets do it now. After 4 cycles things have to change and I am hoping these changes/procedures for both of us do the trick.

If anyone had told me the number of needles and procedures I would be undergoing a few years ago I would have said no way, I could not do all that. However when you really want something as much as we want to start a family you are prepared to go through anything.

Wednesday 7 December 2011

The aftermath of IVF Round 4

JAN 2011

1 Jan - 20 Jan

TISSUES - HAVE GONE THROUGH A TON OF THESE

FINDING IT HARD TO GET OUT OF BED & FACE THE WORLD


The past few days have been quite hard. My emotions are up & down, but for the most part I am pretty low.  H & I are able to talk about everything that has happened in the past few days and share how we are feeling etc...

I keep going between anger & sadness. I am angry that this happened to us. Angry that I let myself feel so positive this time that things would work out. Angry that Dr J is away for a few weeks and I can't go see her NOW and ask her all the questions I have about this and about what to do in the future. I want & need to talk about all these things now. Angry that the one time I wanted to see the counsellor at my clinic they too are away and then when they gave me the number for the back up counsellor, I called and got their machine stating they too are away. I feel angry & abandoned by the professionals when I really need them most.

When I am not angry I am incredibly sad and prone to lots of tears. I was so happy that we had made it and we were going to get our much wanted baby, besides that I was thrilled at the thought of no more IVF. Happy that I did not have to lay awake at night and worry about things like would we ever have a child? Would we end up having to use donor eggs/sperm or have to adopt. Now all my fears are back and worse than ever. H is devastated, especially with the way things happened. Going from celebrating such good news to only get such bad news the next day. Besides H, I have got support from the ladies on the IVF forum I became a part of, unfortunately most of them have gone through this & know exactly what I am feeling but of course everyone handles things in different ways. It's a help of sorts but I really don't have any friends close by who can come round & just be with me & help me cope. They all live from over an hour away with families & commitments of their own & some are on the other side of the world & one in particular is great with emails & even skype which has been a comfort.

As for my mother, we have always had what you might call a rocky relationship. Things in the past 18 months have been better but I had to accept years ago she is not the type of Mother most daughters have & will never be. She is someone who should never have had a child as she just does not have that mothering instinct. If I was to phone her in tears she would have no idea what to do. When I told her about what had happened her first response instead of "that's awful', "I'm so sorry what can I do," 'how are you both coping?" was to say "that's no good, but its better it happen now then have a baby with something wrong with it like being retarded or deformed".

We want a child so of course we will continue with IVF but for now I have lost all faith in it and I am scared of doing another cycle. Of course what scares me the most is going through this all over again. As for the way I am feeling I really have to take this day by day at the moment. I never ever imagined that the path to starting a family would be filled with so much stress, frustration and so many tears.

I have found the past few weeks very difficult to cope with. I don't want to get out of bed & face the world - I just don't have the strength. I sleep a lot & that's easy as I'm so exhausted from the floods of tears that can just arrive at a minutes notice with no warning. I try to do things to distract myself & keep myself busy. Sometimes they work but other times they don't. I suffered severe depression many years ago and this is almost what that felt like & I was getting scared I was going to have it come back.

I do have a good therapist I still see & started seeing regularly again when we started IVF as the hormones etc... can & do interfere with your brain chemicals, that's one of the reasons so many women get post partum depression for no reason. I finally got an emergency appointment to get n & see Dr K and tell her what had happened in the past few weeks & how I wasn't coping & she reassured me that what I was experiencing was normal. A combination of the hormones & brain chemicals and also the grieving process. Dr K did not think my depression was coming back. I was advised to keep going like I had been with doing things to try to keep myself busy & eventually things would get easier in a few weeks. If they didn't then might have some cause for concern.

Dr K was right & eventually day by day it did get easier to cope but I still felt alot of sadness. Unfortunately when they discuss IVF with you they go over all the medical & clinical details but no one explains the emotional side of it & what to expect. I know what I have experienced since last June, I was not expecting at all.

IVF Round 4 This felt like such a cruel blow.....

NOV 2010

Again this post is in a diary type format & was written as these events were happening.

18 Nov
Here we go again....

We saw Dr J today to discuss our last cycle and what to do going forward.  Dr J was sad about what happened with the last cycle and is pretty sure we lost the pregnancy due to my becoming ill with whooping cough, she said to get that ill in the early stages is very dangerous. She was optimistic however that this cycle we did actually get pregnant though.

We are now all set to go for round 4 in December, we will be doing an antagonist cycle again and also being using clexane this time after transfer, she said she has had a lot of success with clexane.
As of today I started taking provera and will be on it for 14 days to bring on my period as my cycle has become totally crazy with all these hormones I'm taking, as soon as it arrives its back to needle time.

Hoping and praying this will be the one.

29 Nov
Period arrived early so it is time to start again. Pick up my drugs from the clinic Monday and start Puregon injections that night. I was so worried about the injections the first time round now they do not bother me at all. All the stress is down to making sure you are on the right dose of medication and get good size/number of follicles at the scans so egg pick up is on time. Then there is the number of eggs collected then how many fertilise and then how many make it to Day 5 for eventual transfer. Arrggghhhh so much to stress over!!

2 Dec
Today was my first scan for this cycle. I only started medication Monday but Dr J wanted to scan me early this cycle. After having some trouble finding my ovaries, she found approx 5 small follicles each side. I am to stay on 250 puregon and start my orgalutran shots Saturday. Next scan is Monday 6/12.

Dr J is so nice but I get sick of going to her room for scans during this part and then up to the clinic to pick up medication. For a few days last month when I had my positive test result, aside from feeling relief that I was actually able to get pregnant, I thought how great it would be not to have to go to all these appointments again etc...   It was not to be though and here I am doing it again for the fourth time this year. Hopefully it will be the last time.....

I am crossing my fingers that this round goes smoothly and the ultimate reward would be a positive result, I guess all I can do besides take my meds is hope. Would be nice to end the year with some amazing news...

6 Dec
Today  I had my third appointment with Dr J for another scan. At this stage I have about 8-9 follicles which are coming along nicely. Doc has decided to up the dose of puregon from 250 to 300 just to help them along a bit more. I am back for another scan Wednesday and as of today it looks like egg pick up will be Friday or Monday.

I am feeling a little negative about my chances this cycle after what happened last time, I wonder if it is possible to get another positive straight after one? Guess I will have to wait and see, anyway have a few more steps to go till we are at that stage.

8 Dec
Had my 4th appointment with Dr J at some ungodly hour this morning ( I am not a morning person!) Another scan and the same thing, the follicles are just not big enough. Oh I am also what is known as a poor responder yippee!! I either overstimulate and get too many eggs which are then crap quality OR they keep me on a lower dose of meds and I am a slow responder.

Booked in for another scan Friday and egg collection will be Monday if all is good. I am a bit over all this as I'm someone who likes to get going on things.  I am sick of the needles and the scans etc.. Part of me would like a break BUT time is not on my side and I think I would worry myself sick if I was not actively doing something. I feel like I have no choice in this matter, I want a baby so this is what I have to do.

10 Dec
This morning it was scan number 4 (again at an ungodly hour!) and FINALLY the follicles are the right size so I am finally good to go! I have my last hormone injections Saturday and then have 2 trigger (ovidrel) injections at 9.30pm Saturday night. Sunday is an injection free day!!! Egg collection is 9.30am Monday morning (first time its been this late so I get a bit of a sleep in). Here's hoping for some nice eggs that fertilise well. Again I would love some this time to freeze seeing it has not happened yet but worst case I just need 2 excellent ones to transfer back next Saturday 18/12

13 Dec
Egg pick up was this morning and all went smoothly, so sick of the procedure & feel like an old hand at it now though. Know all the staff on sight, even the nice volunteer lady who takes you through to waiting room number one!  When I came round they told me I had 15 eggs. Feeling a bit tired and sore tummy.

Will get a call tomorrow with the fertilisation results - hope they are good.....

14 Dec

Got a call from the scientist with my results. All 15 eggs collected were mature and of the 15 they did ICSI on, 13 have fertilised.

My numbers in the past usually drop off so I am not too excited yet, guess we will have to wait and see how they develop. Apart from the 2 I need for Saturdays transfer I would love the insurance policy of some to freeze this time. It would be so good to know that if this cycle does not work that I had some on ice and would not have to do another full IVF cycle

16 Dec
I got a call this morning to say as of today we have 10 embryos, three have slowed right down and will more than likely arrest. The other 10 I was told are looking good and all have the right amount of cells etc.. that they like to see.

The transfer is all booked for 9.45 am this Saturday.

18 Dec
Today nothing went as planned. We arrived at the clinic for our 9.45 appointment and first off as usual we met with the scientist to tell us about our embryos. First she explained that there was only one good hatching blastocyst to transfer it would be put back with another embryo that was about 14 hours behind the blastocyst stage, this really upset me as we had 2 excellent blastocysts last time and was hoping for at least the same this time. None of the other embryos were ready to freeze and they will call with an update Sunday, this upset me too as this is what has happened every other cycle and pretty much is a guarantee we will have nothing to freeze again.

I made it back to the waiting room to burst into tears, I was pretty devastated we did not have 2 'excellent' embryos to put back like last cycle. You put so much effort into a cycle and do everything right to only get bad results. I was called in for the transfer and as usual it was very painful. The pain of it coupled with the disappointment and the thought of doing this all over again made me start to cry again.  Dr J has never in all our time together seen me cry. My blood test is on the 31/12 and the Dr is going to see me that same day this time, so if its negative we can plan where we go from here.

Normally I feel so good after transfer and we go and have a celebratory drink in the coffee shop in the hospital but today I just wanted to go home. I went straight to bed and cried and stayed there for most of the day. Started aspirin today and continued with crinone. Had my first shot of clexane as well and it stung like crazy.

I had such a good feeling after transfer last time, but this time I already feel like its not going to work. I may sound negative & emotional but having all these hormones running around your system really doesn't help the situation.

If it does work here are what the 2 future bubs look like:



19 Dec
Got the dreaded call this morning from the scientist, once again there is nothing to freeze. The 6 that were left over did not make it. This is the 4th cycle and we still have never got any spare embryos to freeze. This cycle has been our worst so far with 15 eggs collected and only one good blastocyst to put back & one so so one. Obviously there is something wrong with our embryos. We will be discussing this with Dr J when we see her on 31 Dec as something has to change. I just can't keep going doing full IVF cycle again & again. Most people get something to freeze and get a break of sorts doing a frozen cycle.

I am totally stressed and devastated at the thought that if this does not work, then its another full cycle again in the new year.

23 Dec
No news or updates, just the ramblings of a hormonal woman!

I was down for the count all of yesterday with a shocking migraine. I have suffered with them since I was about 8 years old and they only got worse with age. To start IVF I had to go off my preventative meds. The first 2 cycles that were BFN's I got shocking migraines followed a few days later by my period. I could not take the pain any longer and I decided to take my pain medication that I am not supposed to take in case I am pregnant. I decided to take it because I am sure I am not pregnant, if by some miracle I am, it should be ok as there would not have been implantation yet.

When we started this at the beginning of the year I was so positive I would be pregnant by Christmas. Breaking my ankle in March meant our first cycle being cancelled half way through and we could not begin again till June when I was off all meds and totally healed. I still thought my hope of being pregnant for Christmas was a reachable goal. Now with Christmas here and my wish not granted I feel pretty down and like a failure. It also hurts so much to think if I had not caught whooping cough last cycle that I would have had my wish.

I worry that this is never going to happen for us. I know there is adoption(which my Mum talked to me about the other day, I know she was trying to help but it only got me down) but I really want to experience being pregnant.

I feel so hormonal, I do not know if it is a combination of crinone and possibly my period about to come or what??. My back and tummy aches and I feel so low & weepy.

Sorry I sound like such a complainer,really not feeling like my normal self. Hopefully things will turn around soon.

27 Dec
It is 9 days since the embryo transfer and I decided to do a home test. I can not believe it but there are 2 lines, I want to get excited but I am cautious after what happened last cycle. Hoping & praying this is the one and I get a good result with my bloods on Thursday. No I take that back, this will be the one as something bad could not happen twice in a row.

29 Dec
I couldn't help it, I did another home test this morning and the line is even stronger which hopefully means my HCG is rising. My blood test is in the morning and I am anxious for the results.  H and I are both feeling very hopeful this time round. Besides the positive tests this is the longest I have ever gone in a cycle with no bleeding. Also I am still so very tired and have been feeling very off the past few mornings.
Home Tests done on Day 9 then Day 11 the positive line is getting stronger!!!

See you all soon with the results!!!

30 Dec
I have my blood test results & the clinic nurse said the words I had been dying to hear. Your test is positive & the HCG level is 297 and progesterone is 26 which is all really good.  I have a repeat blood test next Tuesday to check that the levels are all rising like they are meant to and then a scan a few days later.

H and I are thrilled, we can not believe it!  I think we will feel even happier after the next blood test and the scan. My due date is calculated as the 4th Sept 2011. We went out & had some lunch to celebrate, the post Christmas sales were on & we saw some baby clothes & for the first time we thought, well we are pregnant lets get something. We got an outfit for a newborn girl & boy. My two favourite characters Hello Kitty for a girl & Winnie The Pooh for a boy.  What a great way to end what has been a very tough year. Can't wait to celebrate New Years Eve tomorrow night. Yep still can not believe it!

30 Dec
I can not believe how things can change so quickly, after being on a high all day. This evening I've started bleeding. I have just spoken with Dr J and she tells me it does not sound good. She wants me to go to bed & rest and call her in the morning.

How can life be this cruel? Letting me get such a great result to start bleeding the same day, I feel sick to my stomach with worry and am in tears. H & I are just laying on the bed hopeful but at the same time distressed. We can't bring ourselves to have any dinner & eventually I think we both fell asleep crying.

31 Dec
As I mentioned we had a pretty bad night last night as we were both worried sick. Dr J called at 7.30am and decided she wanted me to go have another blood test. Waiting for those test results seemed to take forever & when the phone finally went about 5 hours later I was almost to scared to answer.  The results came back that the hcg level has dropped by half in the past 24 hours so I am miscarrying.

We are so devastated, this is a cruel, sick joke. To let us get the call we have been waiting on for months yesterday, the one where the clinic calls to say congratulations. We were both so happy. Hell we even had enough faith to let ourselves buy baby clothes for the first time.

This year has been a very tough year for us and I thought it was ending on a high note. Dr J is on holidays now and I see her when she comes back on the 20th. I had allowed myself to get carried away with positivity too as I thought there was no way on earth something bad could happen twice. I only lost the last pregnancy due to the whooping cough. This time I was well so of course it would work out.

Apart from being so thrilled that our dream of having a baby had finally come true, there was relief in knowing IVF & all it entails was over & done with.

I can't describe or out into words how much this hurts, I would not wish this to happen to anybody. I can't believe this is how we feel & what we are coping with on New Year's Eve.
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